An update for all you patient folks out there.
I was officially discharged back to Topeka on Wednesday last week (day +16, which is pretty damn early) and I had my trifusion catheter yanked last Friday. The hole in my chest is healing beautifully, which makes me think that my blood counts are rising.
I feel pretty good, all things considered. Being home makes such a huge difference. Having a whole house to be isolated in instead of a small room in an unfamiliar place has given me strength and energy that I didn't know I could have. Hope Lodge was an absolute blessing, and I'm so SO glad this ordeal wasn't inpatient. But it's good to be back.
There are still restrictions to follow. Neutropenic diet until +30 days post-transplant, no public places until the end of April (respiratory viruses floating around), no drinking alcohol for 3 months, limited sun exposure, no swimming for 9-12 months.
But I can go outside without a hospital mask on. I can feel the breeze on my face and smell springtime in Kansas. I can go to friends houses as long as there isn't a crowd of people or animal feces laying around. Life is good.
I have bloodwork and a doctor visit here in town at St. Francis tomorrow. I'm excited to see how much my blood counts have risen. A bit nervous about the possibility that they haven't.
